It seems like lately every time i go to visit the boys I am told what is wrong...not what is right. After hearing dreary news for the past three weeks; it is hard not to let it get me down. I almost come to expect that something is wrong with them. Monday night was a breath of fresh air. Having stayed all afternoon with the boys, I went to fill out the paperwork for their birth certificates and then went home for the evening (which is not typical as we usually go up at 8 every night). Jeff called to check on the boys around ten and was told that Grasyson was off of the vent and on a SI-Pap ( a mask that straps around his head that does less than a vent but more than a nasal cannula). WHAT???? Could it be??? Are we over the sick hurdle and on the mend?!!! I have never been so relieved before! I anticipated the following morning where I would get to hold my baby for the first time! My once sedated baby was now making up for loss time and giving his nurse a hard time...I loved watching every fist clench and kick he did when she was trying to do her assessment! Although I still could not see his face as the SI-Pap covered the majority, I was able to kangaroo with my little fighter! I held him skin on skin for about two hours. It took him some time to get comfy with the SI-Pap apparatus on; but once he was calmed with his pacifier and a gentle rock; he rested so sweetly!
That was enough to make my entire month; however, the day just got better and better! Brock and Keaton were on their final bag of TPN (IV nutrients) and would only be given breast milk. Camden was not too far behind the other two little porkers (he is still being treated for an infection which is probably why his feeds are not increasing as fast). Driving home from the hospital and reflecting on the day, I couldn't help but to cry. Not crying for myself or out of sadness, but rather out of pure love and graciousness that my boys together had a great day for the first time. It was a nice break to the bad news streak.
I prayed and nagged the doctor's about when Grayson could get put onto a cannula and off of the SI-Pap which he despised. A day later and my baby boy was moved down to a cannula...I could now see his entire face. Although being off of the SI-Pap did not calm his spirits; kangaroo time with mom sure did. He has continued to fuss and thrush about with the nurses so they occasionally have to sedate him; guess a two pound baby is too much to handle! Every four weeks the boys' doctors chang out. The staff doctor we had when they were first born was back on duty. He was proactive when Grayson's nurses' informed him of his 200+ heart rate and uneasiness (all except when he is kangarooed). He explained that Grayson was withdrawing from all of the narcotics he has been on and became dependent on since his first days of life. He put him on a low dose of morphine that served as Grayson's normal and would slowly ween him off so by the time he comes home he will be completely off and will not be tortured by the effects of withdrawing.
I feel like the boys are now on the up. They still have their issues: Grayson's lungs are still quite hazy (praying they clear so he is not put back on the SI-Pap), Camden's thyroid is too low and he is now receiving meds to balance it out, and Keaton still forgets to breathe quite often (especially when he is comfy); but these are things to be expected from preemie babies. Camden ended the week as the porker of the group. We had noticed he looked extremely pudgy compared to the other three boys. Sure enough he weighs a whopping 3 lbs!!! Keaton at 2.9, Brock at 2.8 and Grayson at 2.5.
|Camden holding Daddy's hand|
|Brock and Momma time|
|First time kangaroo caring with Grayson|
|Keaton being a big boy holding his booper!|